Today I had the absolute honour and privilege to speak at the Womens March The Netherlands.
I was asked to give a voice to the so often forgotten ill, disabled, housebound people, who are not always able to come to marches.
I’m typing this after the march, so my energy levels are low, and I have no idea how to type anymore, but I wanted to share my speech on here, in case people had trouble following along, or would prefer a dutch translation.
Both can be found here:
You can find the transcript of my speech here ❤ And the dutch translation can be found here ❤
Maybe I’ll share more about this at a later time, but for now I’m going to lay down and recover. Lot’s of love to everyone who cheered me on, both irl and online, I appreciate you <3333
Update April 2019: the full speech is now captioned and on YouTube!
Well, you know you’ve neglected your blog, if you forgot to make your annual yearly review post. One of the only things you actually still love about the blog, being able to see a recap from each year.
So here it is. In march. Whoops.
2018 was not nearly as tough as 2017 was, thankfully. But it wasn’t the best year I’ve ever had either. A little mix of good and bad, I’d say.
Apple Shampoo This july I did something I was thinking about doing for years now. I started an instagram to share my diary comics and illustration on. I named it Apple Shampoo, after one of my fav Blink-182 songs. You can find the instagram here. But if you prefer other social media, you can find me on twitter, facebook and tumblr. I mostly use instagram, and just link my posts through there. (and obvi some sjw stuff on the twitter as well, because well, hello, it’s me.)
Sometimes people ask me what I do in a day, and tbh I don’t always know what to say. My days are such a blur of pain and brainfog and just surviving, that I often forget what I did the day before. Let alone what my weekly rythm looks like.
So to get back into the swing of things, I thought I’d start a new blog series about what I do in my daily life. Both things that are part of rehabilitation, and fun things that keep me distracted.
To start out, let’s focus on my Bullet Journal! As it is the place where I keep track of most of the things I do in my daily life.
2,5 years ago, someone asked me why I didn’t just get a stairlift.
For months it was getting harder and harder to get up and down the stairs to my apartment. But I figured I’d eventually get some strength back. So I never applied for a stairlift.
1,5 years ago, I was having a consultation about getting a mobility scooter. And the consultant asked me if I didn’t want a stairlift as well.
I told her, that applying for a mobility scooter at a young age was stressful enough for now. But I’d think about it.
Six months ago, I decided it was time. I didn’t want to move to an apartment without stairs (they are rare, expensive, and tiny in my city). I loved my sunny, several bedrooms big, beautiful apartment too much.
So I did it. I finally made myself think about applying for a stairlift for real.
I struggled with it quite a lot truth be told. Everything from “I’m too young for this” and “What if I do recover in a few years?” and even “But I CAN go up and down” (it’s just very, very painful) crossed my brain. And in the end, I figured it was worth a shot to at least ASK my city council if I am eligible for a stairlift.
And it turns out. I hecking am.
And to celebrate, I made two videos, and my wonderful sister and I even did a photoshoot! HURRAAAAAA!
I had to cancel my Artis Zoo membership. I was not able to go as much as I would like, so the best thing to do was to cancel it.
In january, my dad and I went to the Zoo with my membership card one last time. Kind of like a last hurra, if you will.
It was a really great day, loads of my fav animals came out to say hi. And all the plants were absolutely beautiful. I shot a roll of film to commemorate the occassion, and most of the shots turned out really well. Could this be the revival of my analog love I’ve been waiting for? I really hope so <333
Well deng, another year came and went. And it was another fricking year wasn’t it? Whoo boy.
Besides the obvious world-on-fire-everything-is-scary stuff everyone had to deal with, a whole lot happened in my personal life. And when I say a whole lot, I mean not a lot happened, but it was still super sucky.
Camera: Nikon Lite Touch AF
Film: Kodak Portra 160
2017 was the year that the person who said he wanted to grow old with me, told me he had never been in love with me.
That happened a few months after I found out he had been cheating on me during our entire relationship.
Yup. That happened.
Since I was already in a pretty dark place when this all went down, I spiralled into an even darker place. And I ended up being diagnosed with depression. I’m currently still trying to find the right therapy, that will help me with my depression, while also taking my physical disabilities into account. This has proven rather tricky. Plz to all cross fingers and toes I find something soon, ’cause shit’s hitting the fan in my head and it’s not good.
Those two things seem to have made 2017 a year that feels like one big dark blurb. It feels like it only started yesterday, and at the same time some days this year have felt like decades.
I’m doing my best to climb out of the darkness though. And maybe I’ll start using this blog again as a way to do just that.
For now I’ll leave you with another video (hello yes never not using my blog for videos it seems hello sorry), I promise it’s a good one ❤
Yes, that was my face the entire year of 2017! Fun times, dark times, all the times! See you soon cuties ❤
I put some music over part two of the weekvlog, and here it is! It's a bit more me talking, which can be nice if that's your jam. If not, sorry not sorry, there's still lot's of cute cat shots in between the talking to make up for it though.
(also there's my sweet mother helping me, a pretty awesome houseparty, my sweet sweet friends, my kick ass sister, and even more cute cat shots.)
And I promise I'll come back after christmas to write a proper blogpost about what I've been up to the past year (spoilers: not a lot)
Hey cuties! This is sort of a ‘throw back saturday’ or ‘flash back weekend’ type update, hehe. #laterblog
Last summer I was extremely lucky, ’cause I got to see one of my favourite bands perform. Edward Sharpe & The Magnetic Zeros ❤ The gig was at the beach, which made it even more perfect ❤ I filmed a lot that day, because I knew it was a special one. But I never got around to editing everything together. UNTIL NOW! yay!
It was a really fun day, and I think you can really tell that it was in the video =) But I do want to note that a day like this is very, very, VERY rare for me these days. It took me several weeks of preparing before; resting a lot, not planning too many other outings, takings painkillers during the day, showering the day before, etc, etc. I was in a lot of pain before, during and after the concert, but I pushed myself to stay there, and to try and enjoy it while it was happening. Which was hard, so I’m very thankful that I made a lot of videos, because they help me relive the experience, without feeling the amount of pain that I was in =)
Afterwards I was absolutely exhausted, and I don’t even really remember how long it took me to recover. I think I showered three days after? Something like that? Those recovery bits are always a blur in my mind, so I’m not sure.
So yeah, gigs are not easy for me, and I wanted to remind everyone of that. Because somehow people always think you’re cured when they see that you’re smiling and/or happy. (oh how I wish that were true tho, hehe) Some days are just worth all the pain and trouble, and this one definitely was. So without any further reminders of my pain and agony,here it isssss <3333